Emma’s Surgery is scheduled for May 5th

[4Hursties]

We are now on the surgical schedule to have Emma’s Tetralogy of Fallot corrected. Arbitrarily selecting a date on the calendar was almost impossible for me. She is so pink and pudgy, she has no idea she is a heart baby. So now we anxiously await and hope she just keeps growing stronger in preparation for the surgery. What I wouldn’t give to trade her places!

[AngelMom]

I can only imagine the anxiety you are going to experience now that a official date has been decided upon.
Please let us know what we can do to help or when you are at the point you would like visitors after the surgery has taken place.
(HUGS)

[Lisa Owens]

Big hugs! I hate that pre-surgery wait. It's especially hard when they're so "healthy."

[sssBiasutti]

The waiting is pure torture!!! I can only imagine how you must be very anxious to take your seemingly fine baby in to have heart surgery. That was never the case for us. We will be thinking of your family and praying for your sweet girl.
Sara, Stefano, and Stella

[Alli and Kyle Hicken]

We are still here in the PICU and will likely still be here at Emma's surgery date. We will be sure to find you guys and introduce ourselves. Go have some fun in the sun now and enjoy these next few days... plenty of time to worry later!!

Alli (Grant's mom- HLHS, heterotaxy +some!)
grantmeaheart.blogspot.com

[Ellinger Family]

I remember hating that waiting game because Nathan was more of a pink tet too. As each day grew closer I kept thinking, "Are you sure there's something wrong with his heart?" If you need anything, let us know. Nathan hopefully won't be in the PICU when she has her surgery, but we'll likely still be in the hospital while he gets better from his cleft surgery. If you are up to a visitor, we'd love to stop by.

Good luck to you guys!

[4Hursties]

Just when I was about to go nuts thinking no one understands this horrible count-down to surgery I checked the boards and saw all your messages of love and support. I can not thank you all enough. I would love to see those of you that are currently at the hospital. Is there anything from the "outside" world I can bring any of you?

I am having little panic attacks and I can't sleep very easily right now but I am trying to just put one foot in front of the other. Sometimes I have to put my head to her chest and listen to how she really doesn't have a heart beat at all, it is just a woosh woosh.

We happen to be LDS and Emma's adoption isn't finalized yet. If I have one more person tell me not to worry because if something goes "wrong" she can be sealed to us after her death I am going to throw them through a window.

I am so grateful to have one place I can go and you understand. I am praying for those of you already at the hospital! On Tuesday I am going to try to update my blog: littlebearandpeanut.blogspot.com if you want to hear how she is doing.

Amy

littlebearandpeanut.blogspot.com

[Heart Mommy]

I am sorry that comments from those "outsiders" feel so insensitive. Sometimes they really hurt. I hate those sleepless nights waiting for surgery. The worst part is knowing they NEED it but they don't look like they do. Plus, I don't know if you are like me, but I play senarios in my head of what I think will happen, what has happened, and what the dr.'s have said... OVER AND OVER. I hope you get a little sleep before surgery. Emma is your darling sweet baby, any time we have to watch our kids in pain, hurts us parents. We are supposed to fix everything and kiss it and make the ouchies go away. We will be thinking of your little family... And I will make a special call to add sweet baby Emma to the "Role".....

[cmooredavis]

I totally understand your feelings. We stayed in a hotel near Primary's the night before surgery since our Jacob was the first surgery of the day. I remember trying to eat breakfast at the hotel and people all around us were talking and laughing and having a normal morning. I was thinking "What is wrong with you people acting normal? Don't you know what we are going to have to go through today?" Totally unreasonable thoughts but I was irritated that they were having a regular day and my son was about to have open heart surgery. Hang in there, you can do this!!!