Please help me....

[andysmommy]

I am a mess right now. A complete disaster. I mistakingly read a political blog about the congential heart defects futures act and the blog was going on about how 'egregious' it is. I know we aren't supposed to discuss politics on this forum and that is not what I am trying to do. I got attacked pretty badly on the political blog and this comes with the fact that I've felt so unsupported by my family lately with what is going on with my son. I feel SO alone! I feel like I've been dumped into a lonely world of pain and no one knows I am here. I'm reaching out to you guys because I so badly need help. My son has a care page at www.theheartofaboy.blogspot.com It would mean the world to me if you would visit and comment. None of my extended family or friends ever visit it or comment on it. I just need to know someone out there understands, sees the pain. Please tell me your blogs too so I can visit them.

[Heart Mommy]

I'll make a comment at both places...

It is hard when you feel isolated and alone. The worst part is that on a political blog the whole point is to argue.. and when they are arguing against you that can't be fun...eeeewww. I am not very good at it. Don't you wish people could walk in your shoes for a little while. Or at least read you "HEART" I think it would be a little easier on sociaty as a whole if we could all see the true intent... Good luck we will be cheering for you. Our bloggity is joinedbyourhearts.blogspot.com and you can check out tons of little heros at heartheroslist.blogspot.com I want to add Andy man if it is okay.

[AngelMom]

I am sorry that you have felt beat up for something that is important to you and for something you believed in. When we put ourselves out there, it's a chance we have to take that not everyone will see things the same way, especially those that haven't had to walk in similiar shoes understand. That is where we have to educate and know that some will NEVER get it.

My family was the last place I felt I could turn to and in fact after Hope's birth (she was my firstborn) my Mother metioned to me that maybe my husband and I shouldn't have anymore kids because this had been so hard on her. I love my mom and I understand that she too felt scared, not only for her granddaughter but for her daughter (me). She didn't like that we were all hurting and though she wanted to help, she didn't know how and was frustrated, so instead she withdrew herself from the situation to protect her heart. Of course you and I know that really isn't what we need, we need love and understanding, but just be patient with your family and gently educate them. I know that is what I had to do with my situation and it worked. They now are my loudest Cheer Leaders. If they eventually don't come around then remember you are not alone as you have all of us to lean upon.
I have checked out your blog and will add it to mine. Andy is a cutie and your are doing a great job!

Heart Hugs,
Carolyn Quigley
President, IHH
www.picturetrail.com/littlemisshope
www.quigleyhappenings.blogspot.com

[djgatherum]

My daughter was also born in Sept. (Sept 22nd). We just had our open heart 2 weeks ago. Everything is wonderful. I wish I had some magic words to help what your feeling. I have a wonderful family, but have also felt that overwhelming lonliness! Hang in there. We're all here and understand. I doubt any of us ever thought that we could be doing and dealing with the things we are. Its a miracle everyday!
Big Hugs!!
Jenn